Patient Partner at the Centre d'Excellence sur le Partenariat avec les Patients et le Public
Sylvain Bédard first heard the word transplant in 1980 when he was diagnosed with hypertrophic cardiomyopathy, a heart disease that had just killed his 18-year-old sister. Sylvain will have to fight and survive with the assistance of new health technologies for 20 years before receiving the gift of life. Heart transplanted in 2000, he became in December 2004 the first heart transplant recipient in history to climb over 6000m on Mount Sajama in Bolivia, accompanied by his cardiologist. In 2018, Sylvain will have to undergo a second heart transplant after a 4-year wait. Since 2016, Sylvain has been a patient-partner at CEPPP (Center of Excellence on Partnership with Patients and the Public), Patient Coordinator and member of the Executive Council at CDTRP (Canadian Program for Research in Donation and Transplantation), member of the executive committee of the Quebec Heart Failure Society, and co-Investigator on clinical trial projects and on projects to improve the impact of healthcare partnerships in research. He also collaborates on digital health projects with Infoway and he is a member of the CHUM augmented intelligence tactical committee.
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